JessicaJessica Warren

All articles by Jessica

 

Super Z Update

Super Z update I first off want to apologize for how LONG it has been since I last wrote.   He has been doing great on the chemo pills!!  He takes one morning and night and no nausea as of now and its been 3 months!!  In fact, no side effects as of now except for
Continue reading...  

Super Z Update

Super Z update This MRI was not what we had hoped for.  Unfortunately the cyst we did surgery on for a second time has started to re-inflate, slowly, but still inflating.   Also there are 3 new cysts on the other side of his brain.  And lastly there is a brain tumor forming on his brain
Continue reading...  

Super Z Update!!!

I know It’s been a while since I’ve posted and my life has somewhat of a natural rhythm back,  I think I’ll dive back in! Zayne started Physical and Occupational therapy , lots of issues trying to get in but finally after the evaluations, we were able to start!! And as much as we STILL
Continue reading...  

Super Z Update

Well unfortunately our site is not working as far as photos go which I’m so bummed about 🙁 Zayne is doing AMAZING!!!!  MRI was reviewed our surgeon in TX and he agrees that there is NO growth from the main tumor or the cyst!!!  So the surgery was a success!!!  There was one spot that
Continue reading...  

To My Amazing School!!!

Yesterday I had the opportunity to stay in Ayden’s class while Jake took Zayne to therapy.  As I sat there I heard the hustle and bustle of all the kids coming in putting their coats and hats away and getting ready for a day of fun.  I looked to the front of the classroom and
Continue reading...  

Super Z update

Super Z update I’m so sorry it’s been so long since our last post.  I am sure everyone has been a little crazy with the holiday season approaching, or more like coming at mach 10 😀 Zayne has been doing amazing in PT!!   I feel like its been a rollercoaster with everything going on with
Continue reading...  

Super Z update

“Mom….my head hurts.”  Zayne said as I kissed his forehead goodnight.  Fear gripped my heart so hard I had to mentally tell myself to breathe in.  “A headache? Again? Show me where buddy.”  He put his hand on the top of his head and said “All over here.”  Exactly where they were before brain surgery. 
Continue reading...  

Super Z update

Well Super Z is home!!!!  🙂  It has been up and down for the passed 2 weeks.  We are having alot of trouble with his brace that helps his knee not hyper-extend.  We got home from another adventure at Mary Free Bed. We stayed the night in hopes to get it all tweeked before we
Continue reading...  

Big Z goes HOME!!!!!

My Boy has made such exceptional progress we are looking at getting out of here in 3-6 days!!!!  GAHHHHH!!!!!  You have no idea how excited our family is!! We thought is was gonna be longer but nope!!! Now don’t get me wrong things are how I want them to be but we have LOTS of
Continue reading...  

Brain surgery day 6 – Zayne

I woke up and looked at the clock.  A little after 8am.  Thank God I slept in.  My husband was amazing and spent the night at the hospital with Zayne so I could play catch up from sleeping on the couch and chair since the ICU.  I pushed start on the coffee pot I was
Continue reading...  

Day 3 Brain surgery-super Z

I heard the nurse walk into our room.   It was a little past 3am.   I looked over and saw my sister sleeping on the couch.  The nurse was grabbing vitals.  I was in the bed with Zayne hoping he didn’t wake up.  The headaches continued and they were worse than 3 years ago.  They came
Continue reading...  

Day 2 of Brain Surgery-Super Zayne

Day 2 of Brain surgery.   He slept most of the night, my sister and I on the other hand not so much.  The nurse came in every hour on the dot.  I wasn’t looking forward to the morning knowing Zayne couldn’t eat anything until after his MRI.  He quit eating Wednesday at 9pm.  So
Continue reading...  

Day 1 of Brain surgery-Super Z

“Surgery went well.  He is in the recovery room now, so you guys can head up and I’ll meet you in there.”  The surgeon smiled at us.  Jake and I took a breath for the first time in 7 hours.  We looked at each other with tears in our eyes.  He was ok.  It felt
Continue reading...  

Super Z blog

I quietly slid in his bed and snuggled up beside him.  Thoughts that day had been rough and I felt like as hard as I fought my thoughts were to strong and I came out of the ring pretty banged up.  My body was exhausted.  But I laid next to him and just took him
Continue reading...  

Super Z update

It was going to be a good day.  I was going to make sure of that.  I like to take the days we go up to Devos for Zayne’s chemo pills as a little date for just him and I.  Heading in we were listening to our inspirational music with our little Biggby hot cocoa. 
Continue reading...  

Super Z update

Well I have been waiting for our sight to get fixed.  For some reason it doesn’t allow me to post pictures :/  But it has been so long and so many people have been asking how Zayne is doing on the new chemo.  I’m so sorry it has taken this long to post.  Hopefully the
Continue reading...  

Super Z Update

Super Z Update Wow!! A lot has happened in the Warren house hold in a month. We sold our house hope to move in with my mom by the end of March, LOTS of memories in our home. It was Jake and I’s first house as a married couple, first baby, the stairs I was
Continue reading...  

Super Z update 2-4-16

I love hearing of all the super Z prayer warriors! When I hear how far our story has stretched it makes me feel like I have the world behind us! I walked into a salon the other day and I recognized a girl there…through talking I found out she follows my son’s story. It’s really
Continue reading...  

Super Z Update…Devos Here we come

Wow….I can’t tell everyone how much I appreciate the support!! I texted a couple people this morning to start prayer chains because I was feeling so afraid and within min. I was flooded with texts, scripture, quotes….you name it. And a warmth wrapped around me. I felt like I could take a break from worry,
Continue reading...  

Super Z update

Well here we are again. Another 2 months has gone by and it’s time to go back to TX for an MRI. Zayne has been doing amazing I have to say!! He is diving into school and LOVES it!!!! Springport has been simply incredible at helping him with all the vision problems!! He has a
Continue reading...  

Super Z update

No Frills tonight.  Just facts.  After much prayer, Jake and I have decided to simply wait until January scans.  The surgeon said he won’t let the cyst get much bigger…It will have to be drained.  The decision ahead of us now is deciding to put a port in his brain or have the doctor drain
Continue reading...  

Why faith?

We spoke to the neuro-surgeon last night. He explained that some circumstances are black and white and some are gray. The one we are in with Zayne is gray. He basically said the decision is up to us. Up to us. My husband and I both felt the weight the neuro-surgeon put in our lap.
Continue reading...  

Super Z update

Well, I’m not gonna lie. Today was hard. Harder than most. We headed in at 6am this morning and ran into traffic so bad we were 45 min late. Putting him down for the MRI was one of the worst experiences. As they put in the propophal it burns, and all though they put lidocane
Continue reading...  

Leaving…

I slowly let my body stretch as I become aware of my senses. My room is cool. I quietly sneak out of the covers and downstairs. The morning is beautiful. The fog has covered the lake entirely. The purple hue that touches the sky and fades up to pale orange is breath taking. Frost clings
Continue reading...  

Calling all Z Angels

I feel weightless. Floating in some far off, not conscious, place. “Mom…” I vaguely hear the small voice. I can’t tell if it’s a dream or real. I don’t have the energy to open my eyes. I drift once again into the unconscious. “Mom…” this time my senses awake quicker. I know it’s real. I
Continue reading...  

SUPER ZAYNE… and his port removal!!!

After getting the news that the tumor and cyst were growing, I told myself that was awesome. After a few days of letting that settle in I didn’t feel like it was good news anymore. I don’t like to look at my situation and not feel 100% blessed. Yes some days I put this Z
Continue reading...  

Super Z update

MRI week. I find myself patting my own back this week. God has definitely been graceful and I have been listening. My mind has run off a few times but thankfully I have been able to look at the evidence of God standing with me. I am beyond blessed that I wasn’t insane all month
Continue reading...  

Super Z got a haircut!!

Well….big Z got a haircut. I would say I’m excited but frankly I’m never cutting it again. I don’t know what I was thinking, besides the fact that he was has been begging me for the past few months to cut it. So today Ayden went in to get his done and Zayne wanted to
Continue reading...  

Happy Birthday Zayne!!!

I just wanted to write to my beautiful baby boy and tell him how happy I am that God chose us to look after him. I can remember the day so vividly when I found out I was pregnant. I had gone to the Redi Care at 8 pm because I was sure the pain
Continue reading...  

Sifting through paperwork of MRI’s, Reports, Medical Ins. I sit here and read things like “Cystic Mass…Enhancing tumor…Solid lesion” and I can’t help but wish it away. I sit here and want to rip up the papers and scream at God to make my life normal. Why couldn’t he just be a normal little boy
Continue reading...  

We wait… Super Z update Texas

Well….in the world of Zayne…EVERYTHING is upside down. I promise to have all the TX stories on the blog but I just wanted to update everyone and let you guys know whats going on. The MRI came back from this morning and the cyst is just as big as it was before the first brain
Continue reading...  

Irreplaceable moments…We need them all

I had the opportunity to visit one of my friends tonight who recently had a baby boy. I was so excited I could barley wait for the day to get over so I could snuggle that fresh little baby. And he was just perfect. There is no way else to describe it. Perfect. I have
Continue reading...  

Speechless still…

I was walking back to my car after my son’s last baseball game tonight. It turned out to be such a beautiful night and perfect for playing baseball. I dropped Zayne off at my moms and got to watch the game without Zayne spitting at me, throwing dirt or a fit and without him draining
Continue reading...  

Super Z update

Super Z Update Well we have been communicating A LOT with the doctors this week. I will sum it up as best I can. The tumor has not grown, so this is good, the cyst, however is back to the size it was before his brain surgery. I have already noticed the same behavioral shifts.
Continue reading...  

Normal didn’t last long enough

He just doesn’t seem right. Stop Jessie….be positive. Stop creating things. Why don’t you be happy? My thoughts of the previous month came rushing in when I heard the doctor say “The cyst is definitely bigger to the naked eye.” I knew it. He hasn’t been the carefree little boy he was after brain surgery.
Continue reading...  

Big Z talks about Jake the wrestler

Last week, I was up at the ballgame watching my oldest play baseball!! So adorable I might add…all his little buddies cheering him on, they are all so little and look so cute. Well anyway I also had Zayne up their and he was bored to TEARS. Such a trooper though as horrible as his
Continue reading...  

Super Z update

Well…for those of you who are following my little boy we finally have an MRI date…I still can’t believe it’s been over 3 months since we got the last MRI.  We are set to go into Devoss on June 3rd….EARLY in the morning.  I’m excited and nervous about this one… but when am I not
Continue reading...  

Super Z update

I find myself walking around the subdivision at my in-laws in Texas. There is a cool breeze as the sun shines down. Ear buds, blaring the song It Is Well. My pace quickens and the walk turns into a jog. This mountain that’s in front of me…will be thrown into the midst of the sea.
Continue reading...  

Did I do enough for him?

The guilt. I feel it following me. I hear it whisper. My mind runs.  Did I do enough? Could I have done more? I change my thoughts. Time continues and guilt starts creeping in again. It’s heavy weight wraps around me. This time I can’t shake it. I sulk at the extra baggage. How did
Continue reading...  

She’s my person : )

I just dropped my sister off at the airport. When I look back over the last 2 weeks I cannot imagine going through it without her. Everyone knows there isn’t much we do without each other. Jamie is my person. There aren’t many people I let all the way in…but she is one of them.
Continue reading...  

Rivals don’t exist in this army for one!

“You coming to the Jonesville meet tonight Jess?” Dave Pratt had asked me through text. My family had been unable to attend any meets this year due to all the traveling trying to figure out the best route for Zayne. And then once the words BRAIN SURGERY were said I frankly lost my marbles and
Continue reading...  

Super Z update- by Jessica Warren

Well…gosh…a lot has happened for our family this week. We got back from Philadelphia and were home just a short when we got the news that our amazing pastor passed away. He was something that the words on this bland piece of paper will never capture. He was the reason Jake and I started attending
Continue reading...  

Super Z checks out ONE more hospital…

Super Z update: Well…..alot has happened in a couple days. Philadelphia called and was able to schedule all 3 appts. In one day. Oncolgoy, neuro-opthamology, and the neuro-surgeon. I told God if He could get us into all 3 docs in one day we would go check it out. So we are gonna check it
Continue reading...  

Super Zayne’s Journey Ahead…

Super Z update: The hum of the hospital. It’s become a familiar sound to me. Be here…be here. Don’t fear. He goes before me, before any information I receive He is already there. I don’t have to be afraid. I repeated a lot of these types of things and scriptures in my head as we
Continue reading...  

Super Z update

Thankyou to all of you that are praying for my family! Zayne goes back to Devoss tomorrow for his monthly antibiotic. And then we are taking a trip to Houston to the children’s hospital. Our family will go down with Zayne for testing and see what they would decide the next step to be is.
Continue reading...  

We Wait With Super Z

“Babe?” Jake said on the other end of the phone. I had been waiting for his call all morning. He headed into work Monday morning and we were both a little anxious because St. Jude was going to contact him. “Yea….what did they say?” “Well…(sigh) They have 3 trials going on for gliomic tumors. The
Continue reading...