Super Z Update

Super Z update

This MRI was not what we had hoped for.  Unfortunately the cyst we did surgery on for a second time has started to re-inflate, slowly, but still inflating.   Also there are 3 new cysts on the other side of his brain.  And lastly there is a brain tumor forming on his brain stem.  I know that is a lot to take in and I’m very sorry for having to give this ROTTEN update.  I’d much rather post the fun ones.   However, I’d like to start off by saying how BLESSED we are.  Zayne as of right now is completely symptom free!! I didn’t think this MRI would come back with any bad news and things don’t always go as planned.  But this Mama is happy that her boy doesn’t have headaches and is LIVING LIFE!!!!  We are not telling Zayne, Ayden or Bo of this news so those of you that involve your kids in praying for our family just let them know that Zayne will be going back on chemo to help kick this tumors butt.  We want to keep energy positive and uplifting!!!  Don’t get me wrong I had my time to scream, shout profanities, to write God off just to say I’m sorry to Him a little bit later 😉  As a mother I don’t understand, and I’m NOT happy or by any means OK with this news, but I do know the POWER God has placed within us all.  God has always guided us, even when I am mad and yelling at Him, He always has a plan.  So when you see us give us a big hug and let us know you’re going to stay positive with us and that you’ve got our back.  I found myself struggling to post this because I want all the uplifting, positivity I can get going toward my kid.  And when you get news like this it’s hard to stay positive: / But then I felt God urging me to “Rally The Troops” again.  You all have been such an amazing support while we have been going through this 4 year journey and I know how much each and every one of you have been there for us to lean on.    Seeing people post they are praying for us or getting a text telling us something funny or to stay strong.  Or sharing an encouraging scripture!!  All of it serves a purpose and we notice!!! We appreciate all of it!! And a special thanks to our close family.  We have all been through it with this journey and we have cried, screamed, and told them the what if’s no one should know.  So I just want to say thankyou to my close group that has been there for me even when I’m not so fun to be around.  You guys are the best!!!

W e do have a plan; he will be going on oral chemo again.  Our oncologist in TX has actually been testing the pieces of tumor they took out from both brain surgeries against these 2 chemotherapies and they seem to be attacking the tumor. We head out to Devoss this Monday for blood-work and to pick up the first round of Chemo. So we are very hopeful that we can start hitting this tumor on his brain stem quickly and forcefully.  I can’t stress enough that we are going to stand strong and stay POSITIVE about this.  I know we will have our moments and I’m not saying I won’t have a weak moment and post a horrible blog, but overall I will CHOOSE to have joy in this trial, WE WILL run the race and WE WILL defeat this.   I hope every one of you will be able to join our family in choosing the same. Thank you again in advance for joining us in this fight!!  I cannot tell you how random it is that I feel strength or comfort throughout the day and I know someone is praying for us.  I will try my hardest to keep everyone updated, however my main goal for the next 2 months is to soak up both my boys and watch and learn from them ENJOYING life and soaking up summer!!!