Super Z update

Ok, I am going to be pretty brief.  I just can’t seem to catch up with life enough to sit down.


This surgery has been a challenge.  There was some damage in working to get the cyst under control.  This caused him paralysis to his left leg and left arm, and on the left side of his face.  We had a scare on Sunday, he seemed to go into these non responsive modes and Sunday’s lasted so long it was scary.  We think it was due to pain.  They had a hard time getting that under control, and since Zayne is used to chronic headaches he has developed a pretty good tuning out skill to manage.   Once they got pain under control, it seemed to help.  They are still working to manage the pain.  He is on a hefty pain pill still…so please pray that that pain subsides.


On to the good news.  The boy stood on his own 2 feet today and balanced by himself.  This is HUGE!!!  He was also able to take 5 steps just holding on to the Dr. hands(until now we have had to support his weight for him.)  And along with that there was a sighting of left arm movement…which is a first sense surgery.

They have now checked out of the hospital and head to the rehab center tomorrow where he will stay.  We aren’t sure of a time line.  I have heard anywhere from 2 to 6 months.  It is going to be tough and I wish they didn’t have to go through all this, but I am grateful that walking is still an option for this little guy.

Thank you all so much for your support!!!  YOU HAVE KNOW IDEA.  We could feel your prayers.   I do apologize for our lack of updates.  We really want to keep you informed, you have been so good to us.  But this experience turned into just putting one foot in front of the other  hanging on to any thread of our faith and quite honestly…our sanity…. And I am not kidding.  Toughest thing we have every been through.


Jess and I have so much more to say, but life doesn’t give us a moment these days.  We wanted to at least get everyone updated on what has been happening in this whirlwind.